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Partnership to improve the care of people with neurological conditions

19 October 2017 @TeesUniNews

 

A charity which strives to improve the lives of people living with neurological conditions has teamed up with Teesside University to highlight some of the struggles and concerns they are facing.

Neuro Key event at Teesside University.
Neuro Key event at Teesside University.

There are over 12.5million people in the UK living with neurological conditions, with 38,000 of those based in the North East.

Neuro Key, the new working name for the Tees Valley, Durham and North Yorkshire Neurological Alliance, has worked with academics and students from Teesside University for a number of years to produce evidence of the health and social care needs of people with neurological conditions.

An impact event was held at Teesside University on 18 October to showcase some of the work and highlight the experiences and support needs of people living with neurological conditions.

A report from the Neurological Alliance in 2017 found that people living with neurological conditions are dissatisfied with their care. In addition, Neuro Key believes that neurological conditions do not appear to be high on the UK Government’s agenda in comparison to chronic conditions such as cancer, diabetes and chronic heart disease.

It says funding for neurological conditions has been cut dramatically and the Clinical Director for Neurology post was abolished in 2016.

We put people with lived experience at the heart of everything we do and events like this bring research to life for people who take part.

Dr Stephanie Kilinc

The event at Teesside University highlighted the benefit of service-user research for the improvement of care for people with neurological conditions, and aimed to increase the understanding of the psychological impact of living with neurological conditions.

Dr Stephanie Kilinc, Senior Lecturer in Psychology in Teesside University’s School of Social Sciences, Humanities & law, helped to organise the Neuro Key Impact Event.

She said: 'We put people with lived experience at the heart of everything we do and events like this bring research to life for people who take part.'

Joanne Cole, Head of Operations at Neuro Key said: 'People with lifelong, hidden neurological conditions are being failed by a system that no longer has the knowledge about complexities of diagnoses or what people need.'